Ethan & Isaac need your help. Read their story.

3RD ANNUAL SPRING FLING!

Posted: November 13th, 2012 | Author: | Filed under: Uncategorized | No Comments »

MARCH 23, 2013!!!!!!! Come one, come all!!!


3rd Annual Spring Fling is being planned now! Mark your Calendars!

Posted: November 13th, 2012 | Author: | Filed under: Uncategorized | No Comments »

The Hold My Hand for Life Foundation will assist our community members in joining the Be the Match National Marrow Donor program (www.marrow.org) and potentially becoming the life-saving bone marrow match for which a family has been hoping and praying. Over the past three years, Hold My Hand for Life has given people the opportunity to become a bone marrow or blood donor while enjoying a day of free fellowship with members of our local community. To date, our fundraising efforts each year have brought together >1500 community members, encouraged over 300 donors to join the bone marrow registry, and allowed us to make yearly monetary donations to the Fanconi Anemia Reasearch Fund (FARF) (www.fanconi.org) and Be the Match National Marrow Program with the goal of giving hope to patients and families. For everyone who wishes to join the registry, there is a fee (~$100/person) associated to cover the lab costs of ‘typing’ one’s bone marrow. We attempt to fundraise to assist with paying this fee for a number of those who otherwise would not be able to become a marrow donor due to financial limitations. We also strive to make a charitable contribution to assist in the fight for a cure for Fanconi anemia. This is where we need your help!

The majority of our funds raised are collected through silent auction items and monetary donations. We are requesting any auction item or monetary donation that you can give, to assist us with giving Ethan and Isaac, and other with Fanconi anemia, a chance at life. Donating to our silent auction gives you a great opportunity to advertise while helping cover the costs associated with any individuals wishing to join the bone marrow registry or support ongoing research efforts aimed at finding a cure for Fanconi anemia. Be the Match National Marrow Donor Program gives hope to thousands of people suffering from chronic illness, which requires a bone marrow transplant, not just those with Fanconi Anemia. We were thinking that some autographed memorabilia would be great! But we will be grateful for anything!!
At the bone marrow drive, there will be a multitude of family activities, including a huge Easter egg hunt, moon bounces, silent auction, face painting, agility dogs, family photo opportunities, food, and much more. We are pleased we can offer this free, fun filled day to our community on March 23, 2013 in Ruckersville, Virginia! Again, thank you for any contributions you can give to the Hold My Hand for Life Foundation, and please sign up to “Be the Match” and help us give Ethan and Isaac what no child should have to ask for: a future.


Another wonderful year!!!

Posted: March 31st, 2012 | Author: | Filed under: Uncategorized | No Comments »

What an AWESOME day and a great turn out for our Spring Fling! We had 69 people join the bone marrow registry and 30+ people (last I heard) donate blood to VBS!!! I feel so lucky to live in such an amazing community and am prayerful that our efforts will help others who are in need of a gift……the gift of life. Thank you for your support, kindness, gracious giving!!!


Auction Preview!!!

Posted: March 27th, 2012 | Author: | Filed under: Uncategorized | No Comments »

There will be lots of great items at our silent including things from UVA sports teams, some NFL football stuff, some MLB stuff and NASCAR tickets!! Also there is a lot of thirty-one bags, gift certificates to local attractions, and an abundance tickets of family fun activities including Disney Live, fly fishing lessons, piano lessons, bowling, putt-putt, movie tickets, music festival tickets and more!! Don’t miss a great opportunity to get some good stuff, join the bone marrow registry, and support Hold My Hand for Life. See you March 31st at 1pm at Spring Hill Baptist church for afternoon of family fun!


Donor Testimony

Posted: March 23rd, 2012 | Author: | Filed under: Uncategorized | No Comments »

What a great testimony from Trevor Grywatch, UVA Football player, at Spring Hill Baptist Church this past Sunday about the opportunity he had to donate his bone marrow to save a life!!! You could have the same opportunity to bless someone with the gift of life. The first step is to join the bone marrow registry! You will have a chance to do so at Spring Fling on March 31st at Spring Hill Baptist Church. Hope to see you there!


What are the chances?

Posted: March 23rd, 2012 | Author: | Filed under: Uncategorized | No Comments »

On average, 1 in every 540 members of Be The Match Registry® in the United States will go on to donate bone marrow or peripheral blood stem cells (PBSC) to a patient. About 1 of every 40 U.S. Be The Match Registry members will be called for additional testing. Additional testing can be used to narrow the list of several potential donors and to determine who is the best possible match for a patient!


FAnconi Research

Posted: March 17th, 2012 | Author: | Filed under: Uncategorized | Comments Off

The incidence rate, or the likelihood of a child being born with FA, is about 1 in 131,000 in the U.S., with approximately 31 babies born with FA each year in this country. In 2009, 2 of the 31 blessings from God were in our home. Please help us support those who are working hard to find a cure by attending the Spring Fling on March 31st.
Did you know that 85% of the funds used for FA research are raised by families affected by FA?
www.fanconi.org


Are you the one?

Posted: March 17th, 2012 | Author: | Filed under: Uncategorized | No Comments »

People ages 18-44 are 10x more likely to be called as a bone marrow match for someone!! Here’s to recruiting those 18-44 on March 31st at our Spring Fling and bone marrow drive!!!!!!!!


UVA’s Coach and Hold My Hand For Life Rally For Same Cause!

Posted: March 17th, 2012 | Author: | Filed under: Uncategorized | No Comments »

UVA’s Coach London and Hold My Hand for Life lobby for same cause!!!!

Ruckersville, VA – March 12, 2012. Spring Hill’s community-wide Spring Fling will be held March 31st from 1-4pm at Dover-Foxcroft Farm adjacent to Spring Hill Baptist Church in Ruckersville. With over 1,000 people in attendance last year, this year’s seasonal event will be even bigger with lots of free family fun including moon bounces, food, games, a caricature artist, face painting, a huge Easter egg hunt with 10,000+ eggs and other entertainment.
While Spring Fling is all about an Easter egg hunt and fun for the whole family, the partnership with Hold My Hand for Life Foundation has far-ranging impact. This local foundation hosts a private auction and other activities at the event to raise money for Fanconi anemia research (story below). In addition, the foundation conducts a bone marrow registry in conjunction with the Be The Match Registry, a national bone marrow database. Thousands of patients with blood cancers like leukemia and lymphoma, sickle cell and other life-threatening diseases depend on the Be The Match Registry to find a match to save their life.
Last year, UVA head football coach Mike London attended Spring Fling and spoke about his personal experience with Fanconi anemia and bone marrow transplant as well as his passion to motivate people to join the bone marrow registry. While unable to attend this year, Coach London sends words of encouragement, “Give the gift of life. Be an active participant in the National Bone Marrow Registry. Serve and volunteer for bone marrow drives held in your community. Make a significant gesture through your time, resources, or passion to become educated on the benefits of this life-saving opportunity. “
Coach London continues, “Nine years ago I donated bone marrow to my daughter, Ticynn, and saved her life! The last three years the football team held a bone marrow drive on the Grounds of UVA. It resulted in two players and one UVA student being a match. YOU can make a difference by getting involved. Don’t be on the sideline; get in the game and save a life!”


2012 SPRING FLING!

Posted: January 15th, 2012 | Author: | Filed under: Uncategorized | No Comments »

The Hold My Hand For Life Foundation is excited to announce the date of the 2012 Spring Fling and Bone Marrow Drive! Saturday, March 31st! Join us for LOTS of free family fun and your chance to save a life by registering to “Be the Match” and join the Bone Marrow Registry! www.bethematch.org

Ethan and Isaac: Hold my Hand for Life Foundation

Ethan and Isaac Lamm are almost three years old. They are carefree and love to be outdoors, wrestle, giggle and tease one another. But more than anything, they love to play baseball.

Their lives are like the game they love. Their opponent: Fanconi Anemia, an inherited anemia that eventually leads to bone failure. Both boys will need bone marrow transplants to survive, a difficult reality that the twins will have to face far younger than anyone should.

During their lives they will be thrown balls, close calls that turn out in their favor. They’ll develop fevers that result in low blood counts that will return to normal when their illness passes. They’ll endure sleepless nights worrying about what to tell their friends or what the future will bring, but still waking healthy enough to take on the next day.

There will also be strikes, adverse events just because they have Fanconi anemia: illnesses that land them in the hospital or that put them one step closer to bone marrow transplant. And times when they are more susceptible to illness and it will be too risky to attend a school, a sleep over, or a family gathering.

Their hits, like advances in research or a bone marrow donor taking the step to join the bone marrow registry, will put them that much closer to winning the game. These moments will be celebrated and greeted with smiles.

We can hope that there will be home runs: their first middle school dance, high school graduation, first day at college or their wedding day.

Ultimately the game winning grand slam is a successful bone marrow transplant which will help them win their fight against Fanconi Anemia.

Their family has created the Hold my Hand for Life Foundation in their name, raising money to support Fanconi Anemia research and one day find a cure. Until a cure is found, a bone marrow transplant is the only chance for survival for people with Fanconi Anemia. Thus the Foundation aims to empower others to join the Be the Match National Marrow Donor Program with the goal of increasing the number of available donors for all those in need of a bone marrow transplant. In addition, the foundation aims to use funds collected for future fundraising and medical expenses.

The Hold my Hand for Life Foundation provides an annual bone marrow drive to help find a match for not just Ethan and Isaac, but anyone in need of a transplant. This year’s drive will be March 31st, 2012.

Please sign up to “Be the Match,” and help Ethan, & Isaac, and so many others, beat Fanconi Anemia!