Ethan & Isaac need your help. Read their story.

Another wonderful year!!!

Posted: March 31st, 2012 | Author: | Filed under: Uncategorized | No Comments »

What an AWESOME day and a great turn out for our Spring Fling! We had 69 people join the bone marrow registry and 30+ people (last I heard) donate blood to VBS!!! I feel so lucky to live in such an amazing community and am prayerful that our efforts will help others who are in need of a gift……the gift of life. Thank you for your support, kindness, gracious giving!!!

Auction Preview!!!

Posted: March 27th, 2012 | Author: | Filed under: Uncategorized | No Comments »

There will be lots of great items at our silent including things from UVA sports teams, some NFL football stuff, some MLB stuff and NASCAR tickets!! Also there is a lot of thirty-one bags, gift certificates to local attractions, and an abundance tickets of family fun activities including Disney Live, fly fishing lessons, piano lessons, bowling, putt-putt, movie tickets, music festival tickets and more!! Don’t miss a great opportunity to get some good stuff, join the bone marrow registry, and support Hold My Hand for Life. See you March 31st at 1pm at Spring Hill Baptist church for afternoon of family fun!

Donor Testimony

Posted: March 23rd, 2012 | Author: | Filed under: Uncategorized | No Comments »

What a great testimony from Trevor Grywatch, UVA Football player, at Spring Hill Baptist Church this past Sunday about the opportunity he had to donate his bone marrow to save a life!!! You could have the same opportunity to bless someone with the gift of life. The first step is to join the bone marrow registry! You will have a chance to do so at Spring Fling on March 31st at Spring Hill Baptist Church. Hope to see you there!

What are the chances?

Posted: March 23rd, 2012 | Author: | Filed under: Uncategorized | No Comments »

On average, 1 in every 540 members of Be The Match Registry® in the United States will go on to donate bone marrow or peripheral blood stem cells (PBSC) to a patient. About 1 of every 40 U.S. Be The Match Registry members will be called for additional testing. Additional testing can be used to narrow the list of several potential donors and to determine who is the best possible match for a patient!

FAnconi Research

Posted: March 17th, 2012 | Author: | Filed under: Uncategorized | Comments Off

The incidence rate, or the likelihood of a child being born with FA, is about 1 in 131,000 in the U.S., with approximately 31 babies born with FA each year in this country. In 2009, 2 of the 31 blessings from God were in our home. Please help us support those who are working hard to find a cure by attending the Spring Fling on March 31st.
Did you know that 85% of the funds used for FA research are raised by families affected by FA?

Are you the one?

Posted: March 17th, 2012 | Author: | Filed under: Uncategorized | No Comments »

People ages 18-44 are 10x more likely to be called as a bone marrow match for someone!! Here’s to recruiting those 18-44 on March 31st at our Spring Fling and bone marrow drive!!!!!!!!

UVA’s Coach and Hold My Hand For Life Rally For Same Cause!

Posted: March 17th, 2012 | Author: | Filed under: Uncategorized | No Comments »

UVA’s Coach London and Hold My Hand for Life lobby for same cause!!!!

Ruckersville, VA – March 12, 2012. Spring Hill’s community-wide Spring Fling will be held March 31st from 1-4pm at Dover-Foxcroft Farm adjacent to Spring Hill Baptist Church in Ruckersville. With over 1,000 people in attendance last year, this year’s seasonal event will be even bigger with lots of free family fun including moon bounces, food, games, a caricature artist, face painting, a huge Easter egg hunt with 10,000+ eggs and other entertainment.
While Spring Fling is all about an Easter egg hunt and fun for the whole family, the partnership with Hold My Hand for Life Foundation has far-ranging impact. This local foundation hosts a private auction and other activities at the event to raise money for Fanconi anemia research (story below). In addition, the foundation conducts a bone marrow registry in conjunction with the Be The Match Registry, a national bone marrow database. Thousands of patients with blood cancers like leukemia and lymphoma, sickle cell and other life-threatening diseases depend on the Be The Match Registry to find a match to save their life.
Last year, UVA head football coach Mike London attended Spring Fling and spoke about his personal experience with Fanconi anemia and bone marrow transplant as well as his passion to motivate people to join the bone marrow registry. While unable to attend this year, Coach London sends words of encouragement, “Give the gift of life. Be an active participant in the National Bone Marrow Registry. Serve and volunteer for bone marrow drives held in your community. Make a significant gesture through your time, resources, or passion to become educated on the benefits of this life-saving opportunity. “
Coach London continues, “Nine years ago I donated bone marrow to my daughter, Ticynn, and saved her life! The last three years the football team held a bone marrow drive on the Grounds of UVA. It resulted in two players and one UVA student being a match. YOU can make a difference by getting involved. Don’t be on the sideline; get in the game and save a life!”


Posted: January 15th, 2012 | Author: | Filed under: Uncategorized | No Comments »

The Hold My Hand For Life Foundation is excited to announce the date of the 2012 Spring Fling and Bone Marrow Drive! Saturday, March 31st! Join us for LOTS of free family fun and your chance to save a life by registering to “Be the Match” and join the Bone Marrow Registry!

Ethan and Isaac: Hold my Hand for Life Foundation

Ethan and Isaac Lamm are almost three years old. They are carefree and love to be outdoors, wrestle, giggle and tease one another. But more than anything, they love to play baseball.

Their lives are like the game they love. Their opponent: Fanconi Anemia, an inherited anemia that eventually leads to bone failure. Both boys will need bone marrow transplants to survive, a difficult reality that the twins will have to face far younger than anyone should.

During their lives they will be thrown balls, close calls that turn out in their favor. They’ll develop fevers that result in low blood counts that will return to normal when their illness passes. They’ll endure sleepless nights worrying about what to tell their friends or what the future will bring, but still waking healthy enough to take on the next day.

There will also be strikes, adverse events just because they have Fanconi anemia: illnesses that land them in the hospital or that put them one step closer to bone marrow transplant. And times when they are more susceptible to illness and it will be too risky to attend a school, a sleep over, or a family gathering.

Their hits, like advances in research or a bone marrow donor taking the step to join the bone marrow registry, will put them that much closer to winning the game. These moments will be celebrated and greeted with smiles.

We can hope that there will be home runs: their first middle school dance, high school graduation, first day at college or their wedding day.

Ultimately the game winning grand slam is a successful bone marrow transplant which will help them win their fight against Fanconi Anemia.

Their family has created the Hold my Hand for Life Foundation in their name, raising money to support Fanconi Anemia research and one day find a cure. Until a cure is found, a bone marrow transplant is the only chance for survival for people with Fanconi Anemia. Thus the Foundation aims to empower others to join the Be the Match National Marrow Donor Program with the goal of increasing the number of available donors for all those in need of a bone marrow transplant. In addition, the foundation aims to use funds collected for future fundraising and medical expenses.

The Hold my Hand for Life Foundation provides an annual bone marrow drive to help find a match for not just Ethan and Isaac, but anyone in need of a transplant. This year’s drive will be March 31st, 2012.

Please sign up to “Be the Match,” and help Ethan, & Isaac, and so many others, beat Fanconi Anemia!


Posted: April 12th, 2011 | Author: | Filed under: Uncategorized | No Comments »

On April 23rd from we had our 2nd Annual Bone Marrow Drive and Spring Fling…and for the 2nd year in a row, we were humbled and amazed at the support our community gave. We registered 81 more people on the Bone Marrow Registry and raised a large amount of funds that will be divided up among the Be the Match Registry, the Fanconi Anemia Research Funds, and Hold My Hand for Life. We are truly blessed to live in such a wonderful community. Thank you from the bottom of our hearts.

Ethan and Isaac need YOU!!

Posted: February 12th, 2010 | Author: | Filed under: Uncategorized | No Comments »

On March 27th we will be holding a Bone Marrow Donation Drive in order to find a bone marrow donor for Ethan and Isaac. Joining the Bone Marrow Registry means just getting a simple, painless cheek swab. Testing of the swabs costs about $50 a person, which is why we are also having a silent auction to raise funds for the drive! We ask that anyone who can make a donation for the testing, do so. Those generous donations and funds raised at the silent auction will cover the cost of the testing.

Now is the time to get your business in the Life Saving Business! Hold My Hand For Life will be holding a silent auction to raise funds to hold a bone marrow drive on March 27th.  This would be a great advertising tool for you and a life saving one for Ethan and Isaac! Check back soon to see a list of the many exciting items that will be auctioned off! You can contact us at the email link to the right or contact a HMHFL member at 434-960-0863.

Many local businesses and even a Major League Baseball team or two have already promised items for the auction! Spring_Fling_2010_-_flyer