About

Ethan and Isaac: Hold my Hand for Life Foundation

At 22 weeks, mothers are told their babies can hear them singing to them. They’re told that they have eyebrows and that they can blink. They’re told they are having a boy or a girl. These are the facts that a mother wants to hear at 22 weeks, the little things that fill her with joy.

At 22 weeks, Mark and Angella Lamm were told that their twin baby boys, Ethan and Isaac, would be born with Fanconi anemia. This inherited anemia eventually leads to bone marrow failure. Both boys will need bone marrow transplants to survive, a difficult reality that the twins will have to face far younger than anyone should.

Ethan and Isaac don’t know that they have Fanconi anemia. They are happy and busy and loud and funny and full of life. That the disorder has left them with only their four fingers on each hand does not slow them down. Their parents will remind them always that these four fingers are all they need – fingers to cross in hopes that someone will be able to give them both the chance to live their lives past childhood. Fingers to link in earnest pinky promises. Fingers to hold their wedding bands, when they are strong and grown – when they survive.

Their family has created the Hold my Hand for Life Foundation in their name, helping to encourage and empower others to join the Be the Match National Marrow Donor Program with the goal increasing the number of available donors for those in need of bone marrow transplant. In addition, the foundation aims to use funds collected for future fundraising and medical expenses.

Please sign up to Be the Match and help us give Ethan and Isaac what no child should have to ask for: a future.