Ethan & Isaac need your help. Read their story.

Perks of HMHFL 5k registration

Posted: March 23rd, 2015 | Author: | Filed under: Uncategorized | No Comments »

Want to WIN a couple rounds of miniature golf at Pirate Pete’s, Chick-fil-a coupons, a family pass to the Discovery Museum, Redbox rentals, Keep it Clean detailing (with Dustin Kic Robinson), admission tickets to Bounce & Play, Timberwood gift cards, or a 6 month membership and personal training session at Snap Fitness at Hollymead??? Register on-line or in person for the Hold My Hand For Life Foundation’s 5k on 3/28 and get a free raffle ticket and a chance to win some pretty cool prizes!! Look forward to seeing you there on March 28th. Race starts at 9 am at the Forest Lakes South Clubhouse


HMHFL 5k Family Fun Run T-shirts

Posted: March 18th, 2015 | Author: | Filed under: Uncategorized | No Comments »

Don’t forget to PRE-REGISTER for the Hold My Hand For Life Foundation’s 5k Family Fun Run before FRIDAY 3/20 to be guaranteed a race t-shirt. For those who don’t pre-register by 3/20 or who plan to register on-site, we can not ensure we’ll have a t-shirt for you. We will do our best to have some t-shirts available on race day. They will be distributed on a first come first serve basis. Thanks so much for your ongoing support! Looking forward to seeing you all on race day!


Facebook

Posted: March 14th, 2015 | Author: | Filed under: Uncategorized | No Comments »

Check out our HMHFL 5K Family Fun Run and Spring Fling events on Facebook. Search Hold My Hand for Life and “like” our page!!! Hope to see you on March 28th!


Spring Fling 2015!!

Posted: March 7th, 2015 | Author: | Filed under: Uncategorized | Comments Off

Spring_Fling_fullsize_2015

March 28th is the big day! Our day will start at 9am with our Hold My Hand for Life 5k Fun Run at the Forest Lakes clubhouse. Bring your children, friends, family, coworkers, exercise partners or anyone interested in starting their day off right with some exercise. Running not required. Feel free to walk, stroll, skip, hop or cruise at your own speed. No bikes, roller blades, skate boards allowed. Following the race, join us at Spring Hill Baptist Church for our Spring Fling. Fun is guaranteed here! There will be moon bounces, horse & buggy rides, agility dog demo, seated massages, Sweet Tooth Ice Cream truck, race cars, emergency vehicles, face painting, HUGE Easter egg hunt, a silent auction, free food and much more! All activities are free to the community. You will have an opportunity to join Be the Match (International bone marrow registry) at both events. Consider making the commitment to save a life or two!! Looking forward to sunny skies, warmer weather, and seeing you there!


Ready….set….FUN RUN!!!!

Posted: January 29th, 2015 | Author: | Filed under: Uncategorized | No Comments »


Spring Fling 2015

Posted: January 6th, 2015 | Author: | Filed under: Uncategorized | No Comments »

The planning has begun! Spring Fling will be held on March 28, 2015. The day will begin with the Hold My Hand for Life 5k Fun Run at 9:00 am followed by our traditional Spring Fling (family fun event) from 1-4pm at Dover-Foxcroft Farm behind Spring Hill Baptist Church. There will be an opportunity to join Be the Match National Marrow Donor Program at both locations. Mark your calendars to support Ethan & Isaac and spend a great day with your family and community!


Race Map!

Posted: March 17th, 2014 | Author: | Filed under: Uncategorized | No Comments »


April 12th HMHFL 5k Family Fun Run Details

Posted: March 10th, 2014 | Author: | Filed under: Uncategorized | No Comments »


Learn more about Super Ethan & Super Isaac

Posted: February 19th, 2014 | Author: | Filed under: Uncategorized | No Comments »

Hold My Hand for Life 2014


Super Ethan and Super Isaac!!!!!

Posted: January 22nd, 2014 | Author: | Filed under: Uncategorized | No Comments »

Ethan & Isaac Lamm are four years old. They are carefree, love to be outdoors, wrestle one another, giggle, play music, and pretend to be super heroes. Often times, Ethan is Superman and Isaac is Spiderman. They run around plotting their next move against the evil forces and vividly describing how they are going to chase down the imaginary villain. Then, hand in hand, squealing and laughing, off they go!

Little do they know, they are real life super heroes in disguise. Their opponent: Fanconi Anemia (aka: FA), an inherited anemia that eventually leads to bone failure. Both boys will need bone marrow transplants to survive, a difficult reality that the twins will have to face far younger than anyone should.

Ethan & Isaac live normal lives disguising their heroism. They attend school, play baseball and soccer, go to birthday parties and family gatherings, and enjoying life to its fullest. It is only when their villain, FA, choses to shows it’s ugly face are they will be forced reach deep inside themselves to find their magnificent super powers to overcome the evil of blood draws, frequent doctor visits, and bone marrow biopsies. Often questioning if they have enough strength to persevere and asking what if they don’t.

As time passes and the FA villain will begin to take its toll on their bodies. It will force them into a world of isolation where their biggest nemesis will be their failing immune system. Ethan & Isaac will exhaust their physical powers and rely on allies to combine forces with them to turn their battle around. They will rely on healthy, brave bone marrow donors, magnificently brilliant scientists whose life work is searching for a cure, and the strong support of their family, friends, and community.

Thus, their family has created the Hold my Hand for Life Foundation in their name, raising money to support Fanconi Anemia research (www.fanconi.org) and one day find a cure. Until a cure is found, a bone marrow transplant will be their only chance for survival. This foundation aims to empower people to join the Be the Match National Marrow Donor Program (www.marrow.org) with the goal of increasing the number of available donors for all those in need of a bone marrow transplant. In addition, the foundation aims to use funds collected for future fundraising and medical expenses.

Ethan & Isaac continue to live life day to day naïve to when they will have to unveil their super powers. As their bodies continue to battle their FA villain, they will face every day hand in hand, squeal, laughing and celebrating their accomplishments together!

The Hold my Hand for Life Foundation provides an annual bone marrow drive to help find a bone marrow match for not just Ethan and Isaac, but anyone in need of a transplant. This year’s drive will be April 12, 2014 in conjunction with a 5K and our annual Spring Fling. A day full of free, family fun is a guarantee! Please sign up to “Be the Match”, and help Super Ethan & Super Isaac win their battle against Fanconi Anemia!