Ethan & Isaac Lamm are four years old. They are carefree, love to be outdoors, wrestle one another, giggle, play music, and pretend to be super heroes. Often times, Ethan is Superman and Isaac is Spiderman. They run around plotting their next move against the evil forces and vividly describing how they are going to chase down the imaginary villain. Then, hand in hand, squealing and laughing, off they go!
Little do they know, they are real life super heroes in disguise. Their opponent: Fanconi Anemia (aka: FA), an inherited anemia that eventually leads to bone failure. Both boys will need bone marrow transplants to survive, a difficult reality that the twins will have to face far younger than anyone should.
Ethan & Isaac live normal lives disguising their heroism. They attend school, play baseball and soccer, go to birthday parties and family gatherings, and enjoying life to its fullest. It is only when their villain, FA, choses to shows it’s ugly face are they will be forced reach deep inside themselves to find their magnificent super powers to overcome the evil of blood draws, frequent doctor visits, and bone marrow biopsies. Often questioning if they have enough strength to persevere and asking what if they don’t.
As time passes and the FA villain will begin to take its toll on their bodies. It will force them into a world of isolation where their biggest nemesis will be their failing immune system. Ethan & Isaac will exhaust their physical powers and rely on allies to combine forces with them to turn their battle around. They will rely on healthy, brave bone marrow donors, magnificently brilliant scientists whose life work is searching for a cure, and the strong support of their family, friends, and community.
Thus, their family has created the Hold my Hand for Life Foundation in their name, raising money to support Fanconi Anemia research (www.fanconi.org) and one day find a cure. Until a cure is found, a bone marrow transplant will be their only chance for survival. This foundation aims to empower people to join the Be the Match National Marrow Donor Program (www.marrow.org) with the goal of increasing the number of available donors for all those in need of a bone marrow transplant. In addition, the foundation aims to use funds collected for future fundraising and medical expenses.
Ethan & Isaac continue to live life day to day naïve to when they will have to unveil their super powers. As their bodies continue to battle their FA villain, they will face every day hand in hand, squeal, laughing and celebrating their accomplishments together!
The Hold my Hand for Life Foundation provides an annual bone marrow drive to help find a bone marrow match for not just Ethan and Isaac, but anyone in need of a transplant. This year’s drive will be April 12, 2014 in conjunction with a 5K and our annual Spring Fling. A day full of free, family fun is a guarantee! Please sign up to “Be the Match”, and help Super Ethan & Super Isaac win their battle against Fanconi Anemia!
TONS of family fun. 5k. Awesome silent auction. PLUS the chance to save a life with just the swab of your cheek at the Bone Marrow Drive!! APRIL 12TH!!!!!!!!
The Spring Fling is only a month away! Please join us for tons of free family fun! Save a life or two while you are there by joining the Bone Marrow Registry with a simple cheek swab! We will have many many items at our silent auction including Disney World Park Hopper Passes and Taylor Swift Concert Tickets (Washington, DC Show)!
MARCH 23, 2013!!!!!!! Come one, come all!!!
The Hold My Hand for Life Foundation will assist our community members in joining the Be the Match National Marrow Donor program (www.marrow.org) and potentially becoming the life-saving bone marrow match for which a family has been hoping and praying. Over the past three years, Hold My Hand for Life has given people the opportunity to become a bone marrow or blood donor while enjoying a day of free fellowship with members of our local community. To date, our fundraising efforts each year have brought together >1500 community members, encouraged over 300 donors to join the bone marrow registry, and allowed us to make yearly monetary donations to the Fanconi Anemia Reasearch Fund (FARF) (www.fanconi.org) and Be the Match National Marrow Program with the goal of giving hope to patients and families. For everyone who wishes to join the registry, there is a fee (~$100/person) associated to cover the lab costs of ‘typing’ one’s bone marrow. We attempt to fundraise to assist with paying this fee for a number of those who otherwise would not be able to become a marrow donor due to financial limitations. We also strive to make a charitable contribution to assist in the fight for a cure for Fanconi anemia. This is where we need your help!
The majority of our funds raised are collected through silent auction items and monetary donations. We are requesting any auction item or monetary donation that you can give, to assist us with giving Ethan and Isaac, and other with Fanconi anemia, a chance at life. Donating to our silent auction gives you a great opportunity to advertise while helping cover the costs associated with any individuals wishing to join the bone marrow registry or support ongoing research efforts aimed at finding a cure for Fanconi anemia. Be the Match National Marrow Donor Program gives hope to thousands of people suffering from chronic illness, which requires a bone marrow transplant, not just those with Fanconi Anemia. We were thinking that some autographed memorabilia would be great! But we will be grateful for anything!!
At the bone marrow drive, there will be a multitude of family activities, including a huge Easter egg hunt, moon bounces, silent auction, face painting, agility dogs, family photo opportunities, food, and much more. We are pleased we can offer this free, fun filled day to our community on March 23, 2013 in Ruckersville, Virginia! Again, thank you for any contributions you can give to the Hold My Hand for Life Foundation, and please sign up to “Be the Match” and help us give Ethan and Isaac what no child should have to ask for: a future.
What an AWESOME day and a great turn out for our Spring Fling! We had 69 people join the bone marrow registry and 30+ people (last I heard) donate blood to VBS!!! I feel so lucky to live in such an amazing community and am prayerful that our efforts will help others who are in need of a gift……the gift of life. Thank you for your support, kindness, gracious giving!!!
There will be lots of great items at our silent including things from UVA sports teams, some NFL football stuff, some MLB stuff and NASCAR tickets!! Also there is a lot of thirty-one bags, gift certificates to local attractions, and an abundance tickets of family fun activities including Disney Live, fly fishing lessons, piano lessons, bowling, putt-putt, movie tickets, music festival tickets and more!! Don’t miss a great opportunity to get some good stuff, join the bone marrow registry, and support Hold My Hand for Life. See you March 31st at 1pm at Spring Hill Baptist church for afternoon of family fun!